{"id":20,"date":"2026-08-05T09:45:49","date_gmt":"2026-08-05T09:45:49","guid":{"rendered":"https:\/\/kzqnbxd.cluster131.hosting.ovh.net\/baldespompiers\/?page_id=20"},"modified":"2026-08-17T20:14:42","modified_gmt":"2026-08-17T20:14:42","slug":"la-cause","status":"publish","type":"page","link":"https:\/\/balpompiersvitrolles.com\/index.php\/la-cause\/","title":{"rendered":"La cause"},"content":{"rendered":"
<\/div>

Sacha g\u00e8n\u2019espoir\r\n<\/span>
\r\nSacha est un adorable petit gar\u00e7on atteint d\u2019une maladie g\u00e9n\u00e9tique rare : STXBP1.
\r\nSacha est un petit gar\u00e7on n\u00e9 \u00e0 terme, en mai 2020, juste apr\u00e8s le confinement li\u00e9 au Covid19.\r\n

\r\nAu premier jour de sa naissance, un bref \u00e9pisode \u00e9voquant des convulsions est constat\u00e9. Apr\u00e8s plusieurs r\u00e9cidives, Sacha est transf\u00e9r\u00e9 dans diff\u00e9rentes unit\u00e9s d\u2019h\u00f4pitaux Marseillais, pour enfin \u00eatre pris en charge et diagnostiqu\u00e9 au service de neuro-p\u00e9diatrie de l\u2019h\u00f4pital de la Timone.<\/p> <\/div> <\/div><\/div>

La pathologie de Sacha est une enc\u00e9phalopathie \u00e9pileptique infantile pr\u00e9coce, en rapport avec une mutation du g\u00e8ne STXBP1, situ\u00e9 sur le chromosome 9 humain. La mutation de son g\u00e8ne est dite \u201cde novo\u201d c\u2019est-\u00e0-dire qu\u2019elle est apparue alors qu\u2019aucun de ses parents ne la poss\u00e8de dans son patrimoine g\u00e9n\u00e9tique. Cette atteinte est li\u00e9e \u00e0 un accident de la vie.\r\n


\r\nPour en savoir plus rendez-vous sur le site :
\r\nhttps:\/\/www.helloasso.com\/associations\/sacha-gen-espoir\r\n<\/a>


\r\nInstagram :<\/span>
https:\/\/www.instagram.com\/asso.sacha.gen.espoir\/<\/a><\/p> Faire un Don<\/a><\/div> <\/div>

<\/div> <\/div><\/div> <\/div>","protected":false},"excerpt":{"rendered":"

Sacha g\u00e8n\u2019espoir Sacha est un adorable petit gar\u00e7on atteint d\u2019une maladie g\u00e9n\u00e9tique rare : STXBP1. Sacha est un petit gar\u00e7on n\u00e9 \u00e0 terme, en mai 2020, juste apr\u00e8s le confinement li\u00e9 au Covid19. Au premier jour de sa naissance, un bref \u00e9pisode \u00e9voquant des convulsions est constat\u00e9. Apr\u00e8s plusieurs r\u00e9cidives, Sacha est transf\u00e9r\u00e9 dans diff\u00e9rentes…
Read more<\/a><\/p>\n","protected":false},"author":1,"featured_media":89,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"pro\/page-templates\/full-width-page.php","meta":{"footnotes":""},"class_list":["post-20","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nLa cause - Bal des Pompiers de Vitrolles<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/balpompiersvitrolles.com\/index.php\/la-cause\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La cause - Bal des Pompiers de Vitrolles\" \/>\n<meta property=\"og:description\" content=\"Sacha g\u00e8n\u2019espoir Sacha est un adorable petit gar\u00e7on atteint d\u2019une maladie g\u00e9n\u00e9tique rare : STXBP1. Sacha est un petit gar\u00e7on n\u00e9 \u00e0 terme, en mai 2020, juste apr\u00e8s le confinement li\u00e9 au Covid19. Au premier jour de sa naissance, un bref \u00e9pisode \u00e9voquant des convulsions est constat\u00e9. 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Sacha est un petit gar\u00e7on n\u00e9 \u00e0 terme, en mai 2020, juste apr\u00e8s le confinement li\u00e9 au Covid19. Au premier jour de sa naissance, un bref \u00e9pisode \u00e9voquant des convulsions est constat\u00e9. 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